THE REAL EFFECTS OF SICKLE CELL DISEASE ON CHILDREN AND ADOLESCENTS

Jamie Grove, Owen Grove, Colin Michie

Abstract


Informal interviews were conducted with four patients with Sickle Cell Disease (SCD) as inpatients in 2013. The interviewers tried to elucidate the psychosocial effects of SCD, including their quality of life between and during hospital stays. Treatment options including hydroxyurea and the idea of multimedia communication were discussed.


Keywords


Paediatric haemoglobinopathy, Hospitalisation, Multimedia support

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References


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